MS patients fight for access to new ‘Zamboni’ treatment

Unwilling to stop there, hundreds of MS patients are packing their bags and flying to Poland, Bulgaria, India and Kuwait, among other places, willing to spend anywhere from $8,000 to $20,000 to get the vein-clearing treatment.

One medical ethicist describes it as an unprecedented patient revolt; another calls it a mass movement.
“I have never seen anything move so quickly, gather so much momentum,” says Kerry Bowman, a bioethicist at the University of Toronto. Social networking and other websites have popped up and “changed the face of medicine. (Patients) are watching the procedure on YouTube, they are reading testimonials. This is a huge new realm.”

The passionate pleas of MS patients are in stark contrast to the clinical — some would say cold and unreceptive — responses neurologists give as they patiently explain that Zamboni’s theory is just that, a theory, and that more study is needed.”

Clink: http://www.thestar.com/news/gta/article/834303–ms-patients-revolt-over-getting-access-to-zamboni-treatment

For contrast Clink to for the MS Society’s site: http://mssociety.ca/en/treatments/default.htm

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About Howard Oliver
The founder and CEO of What If What Next, Howard Oliver (holiver@whatifwhatnext.com) for more than 20 years has been an entrepreneur, writer, thought leader, PR Guru, business development strategist, technology evangelist, manager and consultant for numerous service, industrial and high technology companies. Howard provides leadership in the application of Agile and Lean project management methodologies for technology enabled social media marketing and PR campaigns that deliver revenue, customer and alliance engagement, and media buzz. Clients in technology and other industries recognize him as a driven, highly creative and disciplined thinker. He also created the WebVoyaging® brand, a market engagement methodology that optimizes the deployment of cloud based, best-in-class marketing automation solutions. The WebVoyaging® process is inspired by the great visionaries who conceived of and built history’s great sailing vessels, which helped establish trade routes and created huge wealth. An accomplished business educator, Howard has recently created the WebVoyaging® Master Class, a training program for organizations interested in implementing Lean marketing automation solutions. Howard holds an MBA from Wilfrid Laurier University, and a Bachelor of Commerce degree from McGill University. Howard is an avid sailor and collector of books.

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